News

Research News

- Exciting DBA Findings from The Children’s Hospital of Philadelphia Published in BLOOD This Week!
  For years, physician scientists have been trying to model the abnormal blood cell production that occurs in patients with DBA. These efforts have involved studies on yeasts, flies, fish and mice. Human models have been difficult to create and previously relied on samples of patient bone marrow. As published this week [...]
- Dr. Harvey Lodish of Whitehead Institute Publishes New Finds
  Click here to read the exciting findings published by Dr. Harvey Lodish of Whitehead Institute titled, “Scientists Identify Potential Drug Target for Treatment-Resistant Anemias.
- Cohen Children’s Medical Center Announces Leucine Trial for Transfused DBA Patients
  Dear DBA Patients and Families: We are pleased to announce the opening of: “The Use of Novel Therapies to Reconstitute Blood Cell Production and Promote Organ Performance, using Bone Marrow Failure as a Model: A Pilot, Phase II Study of the Amino Acid Leucine in the Treatment of Patients with Transfusion-Dependent Diamond [...]
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DMAF News

- Dr. Jeffrey Lipton Honored at National Cancer Center’s 60th Anniversary Gala and Nobility in Science Award Presentation
  Please join us in congratulating Dr. Jeffrey Lipton who was honored for his dedication to research in hematology and stem cell transplantation at the National Cancer Center’s 60th Anniversary Gala and Nobility in Science Award Presentation in New York City on June 12, 2013. Dr. Lipton has worked tirelessly on [...]
- Well Wishes for Congresswoman Carolyn McCarthy
  Please join us in sending positive energy and prayers to our friend Congresswoman Carolyn McCarthy (NY-4) who was recently diagnosed with a form of treatable Lung Cancer. As many of you know, Congresswoman McCarthy has been a tireless advocate for the DBA community, helping to give us a voice in Washington, [...]
- CDC Leadership Announcement
  CDC recently announced that Dr. Lisa Richardson joined the NCBDDD/Division of Blood Disorders as the Division Director on April 8, 2013. Dr. Richardson is a medical officer at the CDC. Dr. Richardson most recently served as the Associate Director of Science in the Division of Cancer Prevention and Control in [...]
- Marie & Manny Arturi meet Vice President Joe Biden!
  On Friday August 24th, Marie and Manny Arturi were grateful and humbled to have the opportunity to meet Vice President Joe Biden! Our most heartfelt thanks for your friendship and continued support Congressman Tim Bishop!
- The American Society of Hematology Honors Senator Robert Casey and Patient Advocate Marie Arturi with 2011 Public Service Awards
  The American Society of Hematology Honors Senator Robert Casey and Patient Advocate Marie Arturi with 2011 Public Service Awards December 1, 2011// < ![CDATA[ // < ![CDATA[ // < ![CDATA[ ektLocalizeDate('2011-12-01','ID0EH') // ]]&gt; (WASHINGTON) – The American Society of Hematology (ASH) will recognize Senator Robert Casey (D-PA) and Marie Arturi, co-founder and Executive Director of the [...]
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Grant Opportunities

- Update to the NHLBI/NIDDK sponsored Program Announcement “Ribosomal Disorders and Their Role in Inherited Bone Marrow Failure Syndromes (R01)”
  The NHLBI and NIDDK are seeking high quality collaborative proposals for the RO1 opportunity described below. The Daniella Foundation hopes each of you will consider developing submissions to meet the Institute’s interest in expanding critical research in this area. Update and Reminder for the NHLBI and NIDDK sponsored Ribosomal Disorders and Their Role [...]
- NIDDK Research Grant Opportunity! Stimulating Hematology Investigation: New Directions in Hematology Research (SHINE-II) (R01)
  ‘SHINE’ on DBA…! DMAF is encouraging all DBA researchers to submit proposals to the National Institute of Diabetes and Digestive and Kidney Diseases Stimulating Hematology Investigation: New Directions in Hematology Research (SHINE-II) (R01). Reminder for the NIDDK sponsored SHINE II Program Announcement New Directions in Hematology Research (SHINE-II) (R01) This is a great [...]
- NIDDK Research Grant Opportunity! Stimulating Hematology Investigation: New Directions in Hematology Research (SHINE-II) (R01)
  ‘SHINE’ on DBA…! DMAF is encouraging all DBA researchers to submit proposals to the National Institute of Diabetes and Digestive and Kidney Diseases Stimulating Hematology Investigation: New Directions in Hematology Research (SHINE-II) (R01). http://grants.nih.gov/grants/guide/pa-files/PAS-13-006.html New Directions in Hematology Research (SHINE-II) (R01): This research Funding Opportunity Announcement (FOA), New Directions in Hematology Research [...]
- Funding Opportunity! 2012 NIH Director’s Transformative Research Projects Awards (Letters of Intent Due 12/12/11)
  Funding Opportunity 2012 NIH Director’s Transformative Research Awards Letters of Intent Due: December 12, 2011. Application Deadline January 12, 2012. Announcing a funding opportunity for the NIH Director’s Transformative Research Awards: * Exceptionally innovative, high risk, original and/or unconventional research * Clinical, basic, and/or behavioral/social science research projects * Up to $25 million total costs per [...]
- Reminder! This program is still active! Notice to Announce Additional Research Objectives and Funding for PAS-10-046: Stimulating Hematology Investigation:New Endeavors (SHINE) (R01)
  This program is still active! Notice to Announce Additional Research Objectives and Funding for PAS-10-046: Stimulating Hematology Investigation:New Endeavors (SHINE) (R01) Issued by: National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) Purpose: The NIDDK is pleased to announce additional research objectives and funding for PAS-10-046: Stimulating Hematology Investigation: New Endeavors [...]
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