Page Sixteen – Late Breaking DBA News

The Daniella Foundation was proud to represent the Diamond Blackfan Anemia community February 25 - March 1 at the 2013 Rare Disease Week in Washington DC. In addition to participating in the “Rare Disease Lobby Day” on Capitol Hill, hosted by...

The Daniella Maria Arturi Foundation is so grateful for all the wonderful people and organizations that continue to support our efforts to fund research to find a cure for DBA. We wanted to take a special opportunity to thank a special new supporter, ...

This year's copy of House Mouse Senate Mouse, written and illustrated by Peter W. and Cheryl S. Barnes, being signed by a few of our key government influences. We are excited to announce that with the amazing help of Congresswoman Carolyn McCarth...

We’re excited to share with you that the online website for the global innovation community, Innovation Excellence, posted a feature story about buncee! The story will be featured front and center on the site’s homepage for about a week and will be perman...

‘SHINE’ on DBA…! DMAF is encouraging all DBA researchers to submit proposals to the National Institute of Diabetes and Digestive and Kidney Diseases Stimulating Hematology Investigation: New Directions in Hematology Research (SHINE-II) (R01).  http...

Anna Rita Migliaccio, PhD, Professor of Medicine, Hematology and Medical Oncology and member of The Tisch Cancer Institute of Mount Sinai School of Medicine, has been awarded a Research Project (R01) grant from the National Institutes of Health (NIH) for ...

What do James Taylor and The Beatles have in common with the Head of the National Institute of Health? Quite a bit, I recently found out when I was hired by legendary financier and philanthropist Michael Milken as Musical Director for a concert during the...

I’m Rachel Foley, I’m 28 years old, I have Diamond Blackfan Anemia, and have been in remission for 25 years!  I want to share a story with you about a change in my life. After 5 incredible years as an Environmental Scientist, including an extraordinary...

On Friday August 24th, Marie and Manny Arturi were grateful and humbled to have the opportunity to meet Vice President Joe Biden! Our most heartfelt thanks for your friendship and continued support Congressman Tim Bishop!  ...

First, let  me start by saying that my heart has been overwhelmingly warmed and touched by ALL of your support!  Issues dealing with my health have, for the most part, been kept to myself until recently.  I wanted to open up and be honest with everyone ab...

As a new researcher in the field of bone marrow failure I felt excited and grateful to be given the opportunity to represent Australia and to present our new research project at the 12th Annual DBA International Consensus Conference sponsored by the Danei...

Jeff and I have attended the most incredible medical conference on DBA and Bone Marrow Failure March 17 – 19 in New York City. There were over 100 global specialists/researchers in attendance as we spent 2 days collaborating and hearing all about DBA rese...

The Daniella Maria Arturi Foundation would like to covey our most sincere thanks to all for your dedication to DBA and for attending the 12th Diamond Blackfan Anemia International Consensus Conference of 2012. ICC was a marvelous meeting and we are very ...

We were thrilled to kick off DBA ICC 2012 in the Vault Room of Bobby Van’s Steakhouse & Grill’s newest location across from the New York Stock Exchange! A wonderful evening was shared by all as we were “Welcomed” back to New York from DMAF Executive ...

“Buncee Bits is the modern way to create a colorful text message, FB post, snapshot of events, or digital card on-the-go.”   Tired of plain text messages?  Look no further.  Buncee bits is bringing “color” to your messaging and social m...

Have you checked out Buncee.com lately? Well, the Buncee creators have given you good reason to!  Check out the new homepage and features like “Buncee bits”! Go to www.buncee.com to see what others are talking about, and hey… start communicating ...

From March 12-14, blood disorder public health professionals and advocates from around the country gathered to take part in the Center for Disease Control & Prevention’s 2nd National Conference on Blood Disorders in Public Health inAtlanta. The confe...

The Diamond Blackfan Anemia International Consensus Conference, sponsored by The Daniella Maria Arturi Foundation is the only meeting held that brings together physicians, scientists, and other parties interested in all aspects of Diamond Blackfan Anemia....

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The American Society of Hematology Honors Senator Robert Casey and Patient Advocate Marie Arturi with 2011 Public Service Awards December 1, 2011// < ![CDATA[ // < ![CDATA[ ektLocalizeDate('2011-12-01','ID0EH') // ]]> (WASHINGTON) – The American So...

The Daniella Maria Arturi Foundation is proud to participate as an exhibitor at The 2011 American Society of Hematology Meeting and Exposition, San Diego, California Dec. 10 - 12! We look forward to seeing you! ...

The Daniella Maria Arturi Foundation is extremely proud to report that this years Presidential Symposium titled Bone Marrow Failure Syndromes will focus on Diamond Blackfan anemia and other ribosomopathies and feature Benjamin L. Ebert, MD, DPhil, Brigham...

The Daniella Maria Arturi Foundation is proud to be able to exhibit at this year’s 53rd American Society of Hematology (ASH) Meeting and Exposition in San Diego, CA! We’re excited that DBA and Bone Marrow Failure issues of great importance to our commu...

Funding Opportunity 2012 NIH Director's Transformative Research Awards Letters of Intent Due: December 12, 2011. Application Deadline January 12, 2012. Announcing a funding opportunity for the NIH Director's Transformative Research Awards: *      ...

Understanding Mechanisms of Terminal Erythroid Maturation (R01)-RFA-12-033 http://grants.nih.gov/grants/guide/rfa-files/RFA-HL-12-033.html This FOA encourages applications that propose hypothesis-driven research to study development of erythroid pre...

This program is still active! Notice to Announce Additional Research Objectives and Funding for PAS-10-046: Stimulating Hematology Investigation:New Endeavors (SHINE) (R01) Issued by: National Institute of Diabetes and Digestive and Kidney Dis...

Buncee is a social publishing platform enabling you to share creatively. Our mobile application encourages using your own photos, text and imagination. While sitting with family or friends or alone, pick a background, insert a picture... add a drawi...

For the Qasba family, Dr. Pankaj Qasba, his wife Deepti along with children, Armaan and Easha the chance to cruise Alaska this past summer was a dream come true. With unbelievable sights, rich history and outdoor activities, Pankaj admits that few family...

The Daniella Maria Arturi Foundation sends our heartfelt congratulations to Dr. David Nathan who has recently been named the honored recipient of the American Society of Hematology’s 2011 Wallace H. Coulter Award for Lifetime Achievement in Hematology...

Editor, David Rattiner at Dan's Papers Inc."  recently sat down with Marie Arturi, CEO of Buncee.com and Executive Director of the Daniella Maria Arturi Foundation to discuss her idea behind www.buncee.com, her vision, her goal and how buncee.com will dir...

Our heartfelt thanks to the Sabatino family,  our Washington D.C. Experience trip auction winner from this years "Hope on the harbor...for a DBA CURE" fundraising event held June 2nd at Battery Gardens in New York City. We are humbled by families like...

June 2nd marked a beautiful evening filled with good friends and supporters of the Daniella Foundation at New York City’s lower Manhattan waterfront oasis, Battery Gardens, to raise awareness and much needed funds for continued DBA scientific research...

Buncee Dad is a free holiday version of our iPad app that enables you to quickly and easily express yourself using your own photos and text. You can share your creation for Father’s Day by sending it as an eCard, posting it to your favorite social net...

Dr. Steve Ellis makes some time in his busy day to sit with some friends in Rome, Italy....

GOP lawmakers: Spare NIH from cuts By Ian Swanson  05/27/11 A group of Republican lawmakers has asked appropriators to avoid making deep cuts to the budget of the National Institutes of Health. The request that NIH be spared highlights the diffi...

Patient Advocates: Advancing Research from outside the Lab Copyright 2011 Elsevier Inc. All rights reserved. Cell Stem Cell, Volume 8, Issue 5, 466-467, 6 May 2011 doi:10.1016/j.stem.2011.04.014 Anna C. Davison Santa Barbara, CA, USA Scientist...

May 5 represents a day of celebration for Cinco de Mayo and also marks a day of celebration for those of us in the DBA world as it is the opening date for the first round of submissions for the NHLBI/NIDDK Program Announcement: “Ribosomal Disorders an...

Fifteen years ago, Marie and Manny Arturi of Laurel lost their 7-month-old daughter to complications of a rare disease.  Now the couple is hoping their Riverhead-based startup company will help ensure no other parent has to suffer the same fate.  The ...

BY LYNETTE SESODIA on Thu April 28th, 2011 Buncee Mom – Mother’s Day eCards (Free) by Buncee LLC is an app that revolutionizes the card-making process. It is perfect for those who cannot afford to splurge on expensive cards or who have tech-savvy mot...

BY ROBIN RHYS on Tue May 03rd, 2011 Show your mom you care, and save money and time while doing it. This group of apps will make your mother’s day a little less stressful. Download Buncee Mom TODAY just in time for Mother's Day!  It's FREE!  View the A...

Dr. Davide Ruggero, University of California, San Francisco would like to bring to the attention of the DBA community a very important publication from one of his colleagues: Dr. Maria Barna at UCSF was highlighted in the April 29th issue of th...

Tim Tran, Alec Gazda-Tran & Dr. Hanna Gazda One sunny April day in 1986, when I was an intern at the University Hospital in Warsaw, Poland, I was treating a teenage boy with a transfusion-dependent form of Diamond Blackfan Anemia (DBA), when he con...

Fred is 5 years old. He loves space shuttles and airplanes and football and pancakes frosted with Nutella. He loves his sister, Matilda, who is almost 3.   He can read and run and ride a bike. He can tell you a joke, hop on one foot, and stand on his head...

Tracie Goldberg in front of her poster “Erythropoiesis Defect in Rpl5- Deficient Mouse Embryonic Stem Cell Model of Diamond Blackfan Anemia Exhibits p53 Dependence”  presented during the poster session at ASPHO April 2011. Congratulations Tracie! ...

  Apple has listed Buncee Mom within "New & Noteworthy" on the iTunes for iPad Apps!! Have fun, be creative this Mother's Day!  To learn more about Buncee Mom - Mother's Day eCards for iPad go to the  iTunes App Store and download Buncee Mom for FRE...

Dr. Adrianna Vlachos was one of 4 Clinical Hematology Presentations at the American Society of Pediatric Hematology/Oncology (ASPHO) Annual Meeting April 13 – 16 in Baltimore, MD.   This years meeting hosted the highest number of attendees at the meeting ...

It’s official!  Diamond Blackfan Anemia Canada is now a registered charity and has joined the worldwide effort to support DBA patients, families and research. The Daniella Foundation looks forward to working closely with our Canadian friends!  Congratu...

Recently, Dr. Lipton went back to Kindergarten as a guest speaker at Mrs. A's Kindergarten class in Tenafly, NJ, where his grandson goes to school.  The attentive class listened as Dr. Lipton discussed blood cells and their function.  So the cla...

Bravo's "Top Chef Masters" has returned with a brand new format and 12 new award-winning chefs hungry to compete for the title of "Top Chef Master" and win $100,000 for their charity. In each episode, money will be at stake, with the winners of every quic...

Seminars in Hematology Volume 48, Issue 2, Pages 73-144 (April 2011) Diamond Blackfan Anemia and Ribosome Biogenesis Edited by Benjamin Ebert MD, PhD, Jeffrey M. Lipton MD, PhD       Diamond Blackfan Anemia and Ribosome Biogenesis: Introd...

Apple has listed the new "Pro" version BUNCEE Pro within "New and Noteworthy"!! If you have …or you know anyone that has an ipad .... please download the new Buncee Pro app for the special introductory offer of ... $1.99  To Learn More About BUNCEE cl...

On Thursday March 17th,  Electric Violinist, Sarah Charness, Granddaughter of Dr. David Nathan opened the Knicks Vs. Memphis NBA game with our National Anthem and a Timeout performance.  Congratulations Sarah! We're sure that it was an amazing experience ...

It always makes us curious.... how did our esteemed colleagues and friends get "here"? Did you know what you wanted to do early on or did life's paths take you down unexpected roads finding yourself "here".  Please consider sharing your stories with us – ...

On February 28, 2011, the Daniella Foundation was proud to represent the DBA community at this year’s Rare Disease Day, a day dedicated toward raising widespread awareness of rare diseases as a global health challenge. Observed all over the world, the Nat...

The Daniella Foundation would like to again congratulate members of our "DBA Family" whom received well deserved awards and recognition at the ASH 2010 Conference in Orlando, Florida.    Dr. Harvey Lodish received the ASH Mentor Award which recognizes ...

Horowitz and Lodish Honored for Their Excellence in Mentoring December 4, 2010 The 2010 ASH Mentor Award for clinical investigation will be presented to Mary M. Horowitz, MD, MS, professor of medicine, the Robert A. Uihlein Jr. Chair in Hematologic...

The Latest and the Greatest Stephen P. Hunger, MD December 7, 2010 This morning’s late-breaking abstract session at 7:30 a.m. in Hall D includes exciting new developments from clinical trials that will influence treatment of patients with benign...

December 6, 2010 Leonard Zon to Deliver E. Donnall Thomas Lecture This Morning Leonard I. Zon, MD, of Children’s Hospital and Dana-Farber Cancer Institute, Howard Hughes Medical Institute, Harvard Stem Cell Institute, Harvard Medical School, Boston...

Using Buncee to stay connected with friends, family and colleagues will help us generate funding to find a cure for Diamond Blackfan Anemia. Do you wish you had a way to share pictures other than just basic “uploading” or attaching to e-mail all th...

The Captain Courageous Ball held on the 19th February 2011 at the Hilton International Adelaide, was a stunningly successful and thoroughly enjoyable night. Guests were encouraged to wear a touch of Superhero with their dinner suits and ball gowns! We ...